VISIBLE: Vision Intervention for Seeing Impaired Babies through Learning and Enrichment

10 Aug 2018

Baby faceVISIBLE is a novel early intervention RCT to address a gap in rehabilitative interventions for infants with brain damage and severe vision impairments. Infants with severe cerebral visual impairment (CVI) at high risk of Cerebral Palsy (CP) at 3-6 months will be enrolled into a 6-month program. This pilot RCT study will assess the feasibility of a vision-awareness program actively engaging parents in enriching their baby’s vision and development compared to usual care. The home-based program of goal directed early intervention will be supported by a multidisciplinary team through parent training and fortnightly home visits. The daily intervention activities will be provided by the parents and will focus on environmental enrichment and targeted vision-aware developmental goals. Behavioural assessments will be utilized to evaluate the program's efficacy on vision, motor, and general developmental function. The five recruiting sites (Pisa, Queensland, New South Wales, Victoria and Western Australia) will utilize existing early detection and intervention networks to recruit at risk infants and their families to the study.

The study has been approved by the Children’s Health Queensland Hospital and Health Service Human Research Ethics Committee and will commence later in 2018 to recruit 32 infants across the five sites. The infants will be followed up until 12 months corrected age to assess the effectiveness of the VISIBLE program on infants with awareness motor, upper limb and cognitive development. Training on the VISIBLE intervention will occur on Monday 29th and Tuesday 30th October in Brisbane by A/Professor Andrea Guzzetta and his team from the Stella Maris Institute in Pisa. 

 

Contact details

For more information, please contact Dr Tracey Evans, VISIBLE Clinical Research Coordinator,

Ph: (07) 3069 7365 or E: QCPRRC@uq.edu.au 

 

This project is funded by Cerebral Palsy Alliance research grant.

Chief Investigators: Prof. Roslyn Boyd, Prof. Andrea Guzzetta, Prof. Iona Novak, Dr Cathy Morgan, Dr Alison Salt, Prof. Glen Gole, Dr Swetha Philip, Dr Kerstin Pannek.

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