Queensland Cerebral Palsy and Rehabilitation Research Centre

NEW Available PhD Projects at the Queensland Cerebral Palsy and Rehabilitation Research Centre at the University of Queensland  

Do you want to help families optimise evidence-based support through the NDIS?

Launch your PhD career helping families optimise evidence-based support through the NDIS.

 

CP-KASP (Cerebral Palsy Knowledge, Advocacy Skills, and Support Program): co-designed with families to optimise evidence-based support through the NDIS. 

For parents of children with disabilities, including cerebral palsy (CP), navigating the complex National Insurance Disability Scheme (NDIS) system to develop an evidence-based package of therapies for their child is challenging. Parents tell us that they need to develop advocacy skills and have a greater understanding of what constitutes evidence-based therapies in order to successfully navigate the NDIS system and choose from 182 available therapies and over 1000 service providers. Currently, there are no capacity building programs for parents of children with disabilities that are peer-driven and peer-led. We

will iteratively co-develop and test a novel web-based multi-component knowledge platform on EDX called CP-KASP (Cerebral Palsy Knowledge, Advocacy Skills and Support Program) comprising (a) webinars and interactive consumer-led virtual groups for families of newly diagnosed children with CP entering the NDIS system; (b) develop a Consumers in research online training program (developed by Anne McKenzie AO) to support consumer-led co-design, implementation and evaluation of CP-KASP. Our CP-KASP project will be co-designed with consumers and clinicians using Participatory Action Research. 

 

PhD opportunities  

  1. Information and support needs of parents and caregivers of children with cerebral palsy to prioritise wellbeing via self-care and healthy family activities. 
  1. Information and support needs of parents of children with cerebral palsy to navigate complex systems. 
  1. Evaluation of consumer and end user involvement process in co-design of a novel web-based multi-component knowledge platform for families of young children with cerebral palsy. 
  1. Evaluation of consumer and end user involvement impact in co-design of a novel web-based multi-component knowledge platform for families of young children with cerebral palsy. 

This project is funded via the MRFF Consumer-Led Grant Round.  Candidates with lived experience are encouraged to apply. 

 

For further information contact:

Dr Leanne Sakzewski 

Phone: 07 3069 7370

Email: l.sakzewski1@uq.edu.au  

 

Chief Investigators: A/Professor Leanne Sakzewski, Dr Fiona Russo, Professor Roslyn Boyd, Dr Koa Whittingham, Dr Shaneen Leishman, Dr Andrea Burgess, Dr Katherine Benfer, A/Prof Zephanie Tyack, Prof Jodie Copley, Prof Robert Ware, Dr Sarah McIntyre.  

Associate Investigators: Syed Afroz Keramat