Serving as the Queensland arm of the AusCP-CTN, the team at the Queensland Cerebral Palsy Rehabilitation & Research Centre (QCPRRC; led by CI Prof. Roslyn Boyd, Director of AusCP-CTN) has partnered with keen researchers and clinicians across Queensland, and successfully established the state-wide QEDIN-CP network. Coordinated by Professor Ros Boyd, Dr Morgan Carlton and supported by our Advanced GMA Assessors and HINE Trainers Carly Luke, Sarah Gibson, Chris Finn, Bernie Shannon and Kym Morris at QCPRRC, QEDIN currently has >320 clinical members representing all 16 HHSs across Queensland and the Mater hospital. QEDIN-CP is a comprehensive program which provides a clear path linking between medical research, clinical workforce, and interested families, as the QEDIN-CP network enables ethics, governance, data transfer for screening, second opinions, calibration, reliability testing and fast-tracking families to available clinical trials of early interventions (funded by Advance QLD Program). To date the QEDIN has referred 792 infants (226 in 2022) to its early diagnosis and interventional clinical trial projects. In 2023 the QEDIN network is expanding to the Northern Territory commencing in Darwin and Alice Springs with NT Health and Danilla Dilba Aboriginal Medical Service specifically to recruit appropriate Aboriginal and Torres Strait Islander families to the LEAP program.
Leveraging from its success and framework establishment, the QEDIN-CP network has further contributed to an implementation of surveillance program at the national scale (KiTE-CP, NHMRC Partnership Program), linking clinical and research workforce between Queensland, New South Wales, and Victoria, allowing more large scale multisite clinical trials to be easily established and connected to interested families. In 2022 Kite-CP has recruited 597 families across Australia (194 from Qld) and follow-up will conclude in early 2025.
The QCPRRC also serves as the Australian-arm of the BORN-TO-GET-THERE international program (supported by the European Horizon 2020 Grant), which aims to increase awareness of evidence based guidelines for early detection, surveillance and intervention for infants with Cerebral Palsy. The BORN-TO-GET-THERE program implements current evidence on early detection, surveillance and intervention for infants at high risk of Cerebral Palsy (CP) by implementing the first International Clinical Practice Guidelines (Novak et al.) in multiple sites in Europe (Italy, Denmark, Netherlands), in low- and middle-income countries (Georgia, Sri Lanka) and hard to reach populations in remote areas of Australia (Queensland and the Northern Territory).
Contact
QEDIN-CP Clinical Co-ordinator: Dr Morgan Carlton, Queensland Cerebral Palsy and Rehabilitation Research Centre, The University of Queensland.
T: 3069 7365
