Queensland Early Detection and Intervention Network – for children at risk of Cerebral Palsy (QEDIN-CP)

January 2016December 2020
Queensland Government

 

 

About the Network

QEDIN-CP (Queensland Early Detection and Intervention Network – for children at risk of Cerebral Palsy) consists of health professionals who have a special interest and training in the identification and care of infants who may be at risk of having cerebral palsy (CP). The ultimate vision of QEDIN-CP is to improve the health and wellbeing of children with CP and their families through early detection and provision of early intervention. QEDIN-CP forms part of the framework for the AQIP research program (funded by the QLD State Government) aimed at earlier detection and early intervention for children who are at high risk of cerebral palsy.

Cerebral palsy most often impacts movement and posture and it can affect children in many different ways. QEDIN-CP aims to assist treating clinicians in confirming whether a child is at high risk of CP or not.  

Our Vision: 

To improve the health and wellbeing of children with cerebral palsy and their families through early detection and early intervention.

Our Mission: 

All children impacted by CP in Queensland will be identified and provided with the earliest possible diagnosis to enable best practice early intervention and fast tracking into clinical trials as part of a national strategy for CP.

QEDIN-CP’s Aims:

  1. To increase the early detection of infants at high risk or with CP to enable entry into interventions earlier at a time of maximum brain development.
  2. To provide information on support for families of infants identified early as being at high risk or of having CP.
  3. To increase the early diagnosis of those infants who are not currently identified as being at high risk for CP but have a medical history that indicates that they could potentially be at risk (50% of CP cases).
  4. To provide support for clinicians involved in the identification/diagnosis of infants who may have CP.
  5. To provide education and training on early detection and early interventions for infants at risk of CP, and the ongoing maintenance of clinical skills for early detection.

 

If you are a clinician and you wish to join our mailing list and to receive meeting invitations to our quarterly meetings, please click on the link below:

Register your interest in the network

 

Useful Resources:

QEDIN Forms:
  1. QEDIN flyer
  2. QEDIN referral form
  3. QEDIN flyer for parents and families
  4. QEDIN Parent information and consent form for families
  5. QEDIN Health Professional Information and consent form
  6. Baby Moves information sheet (iPhone)
  7. Baby Moves information sheet (Android)
  8. Flowchart for screening of infants at risk of CP
Resources for clinicians:
  1. Prechtl’s General Movements Assessment video instructions  (Queensland Health)
  2. Hammersmith Infant Neurological Examination scoring form
Intervention studies available for infants with CP or at High-risk of CP in Queensland:
  1. REACH
  2. GAME
  3. VISIBLE
  4. Early Pact
Useful websites with additional resources:
  1. Australasian Cerebral Palsy Clinical Trials Network (NHMRC CRE) -  https://cre-auscpctn.centre.uq.edu.au/
  2. Cerebral Palsy Alliance -  https://www.cerebralpalsy.org.au/

 

Contact

QEDIN-CP Clinical Co-ordinator: Dr Joanne George

Queensland Cerebral Palsy and Rehabilitation Research Centre, The University of Queensland.

T: 3069 7371

E: qedincp@uq.edu.au

 

All Investigators listed by Site or Hospital and Health Service (HHS): 

The University of Queensland: Prof Roslyn Boyd, Dr Joanne George
Mater Mothers’ Hospital: Dr Elizabeth Hurrion, A/Prof Luke Jardine, Ms Nathalie Holland
Cairns and Hinterland HHS: Ms Lynda McNamara, Dr Neil Archer, Dr Marnie Fraser
Central Queensland HHS:
Dr Cheriya Abdulla
Central West HHS:
Dr Clare Walker
Children's Health Queensland HHS:
Dr Priya Edwards, Dr Nicola Previteria,
Ms Lisa Findlay
Darling Downs HHS:
Dr John Coghlan
Gold Coast HHS:
Dr Peter Schmidt, Mr Vincent Van Dijk
Mackay HHS:
Dr Jacinta Tobin
Metro North HHS:
  • Caboolture Hospital
  • Kilcoy Hospital
  • Redcliffe Hospital
  • Community Indigenous Sub-Acute Services
  • Royal Brisbane & Women’s Hospital
  • The Prince Charles Hospital
Prof Paul Colditz, Dr Pieter Koorts
Metro South HHS:
  • Beaudesert Hospital
  • Logan Hospital
  • Marie Rose Centre – North Stradbroke Island
  • Redland Hospital
  • Wynnum Hospital
  • Queen Elizabeth II Jubilee Hospital
  • Princess Alexandra Hospital
Dr Jan Cullen
North West HHS:
Dr Mark Patrick
South West HHS:
Dr Christopher Buck
Sunshine Coast HHS:
Dr Lizelle Weber, Ms Rebecca Caesar
Torres and Cape HHS:
Dr Anthony Brown
Townsville HHS:
Dr Margot Bosanquet, Ms Donna Fallon
West Moreton HHS:
Dr John Gavranich
Wide Bay HHS:
Dr Clever Banda
Prof Iona Novak, Dr Cathy Morgan (Cerebral Palsy Alliance), Prof Paul Scuffham (Griffith University), Prof Stephen Rose (CSIRO), A/Prof Anthony Smith (Centre for Online Health).

 

 

This project is funded by the Advancing Queensland Innovation Program. 

 

 

Project members

Professor Roslyn Boyd

Acting Director, CHRC
Child Health Research Centre

Dr Joanne George

Postdoctoral Research Fellow
Child Health Research Centre

Dr Tracey Evans

Senior Clinical Research Coordinatr
Child Health Research Centre