QEDIN-CP

Investigators

Chief Investigator: Professor Roslyn Boyd

QEDIN-CP Clinical Co-ordinator: Dr Joanne George

QEDIN-CP Ethics and Governance Co-ordinator: Dr Tracey Evans

All Investigators listed by Site or Hospital and Health Service (HHS): 

About the Network

QEDIN-CP (Queensland Early Detection and Intervention Network – for children at risk of Cerebral Palsy) consists of health professionals who have a special interest and training in the identification and care of infants who may be at risk of having cerebral palsy (CP). The ultimate vision of QEDIN-CP is to improve the health and wellbeing of children with CP and their families through early detection and provision of early intervention. QEDIN-CP forms part of the framework for the AQIP research program (funded by the QLD State Government) aimed at earlier detection and early intervention for children who are at high risk of cerebral palsy.

Cerebral palsy most often impacts movement and posture and it can affect children in many different ways. QEDIN-CP aims to assist treating clinicians in confirming whether a child is at high risk of CP or not.  

QEDIN-CP’s Vision: 

To improve the health and wellbeing of children with cerebral palsy and their families through early detection and early intervention.

QEDIN-CP’s Mission: 

All children impacted by CP in Queensland will be identified and provided with the earliest possible diagnosis to enable best practice early intervention and fast tracking into clinical trials as part of a national strategy for CP.

QEDIN-CP’s Aims:

1. To increase the early detection of infants at high risk or with CP to enable entry into interventions earlier at a time of maximum brain development.

2. To provide information on support for families of infants identified early as being at high risk or of having CP.

3. To increase the early diagnosis of those infants who are not currently identified as being at high risk for CP but have a medical history that indicates that they could potentially be at risk (50% of CP cases).

4. To provide support for clinicians involved in the identification/diagnosis of infants who may have CP.

5. To provide education and training on early detection and early interventions for infants at risk of CP, and the ongoing maintenance of clinical skills for early detection.

Get Involved

We encourage you to register your interest via the link on our website which will add your name to our mailing list and ensure you are kept up to date on developments within the network.

Register your interest in the Network

We would like to invite you to join our next network meeting. Meeting details:

• Date: Wednesday, 18th July 2018
• Time: 12pm - 1:30pm AEST
• Location: Room 401/402, Level 4, Centre for Children’s Health Research, 62 Graham Street South Brisbane, Queensland 4101
• Zoom* Teleconference: https://uqz.zoom.us/j/654863536
• iPhone one-tap:  +61280152088, 654863536#
• Telephone: +61280152088; ID: 654 863 536     

If you haven’t used Zoom on your computer or mobile device before, please download it via https://zoom.us/  and test it via https://zoom.us/test prior to the meeting. Or you can download the “Zoom Cloud Meetings” app on your device. You can create an account for free or your company/institution may already be registered with Zoom and you can use the “Sign in with SSO option”.

Contact

QEDIN-CP Clinical Co-ordinator: Dr Joanne George

Queensland Cerebral Palsy and Rehabilitation Research Centre, The University of Queensland.

T: 3069 7371

E: qedincp@uq.edu.au